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    • CommentAuthormands08
    • CommentTimeSep 24th 2008
     
    Hi,

    was just wondering with lindy mentioning that salicylates are absorbed more easily through the skin, does this include touching foods containing salicylates or just products that you apply to the skin??

    Its just that i actually work in a restaurant!! Not ideal in my situation i know!

    Mands. xxxxxxxxxxxxx
    • CommentAuthorlindyd
    • CommentTimeSep 24th 2008
     
    Yep.. touching foods could count particularly if they are "wet" foods (which sals foods mostly are such as fruit and veg)..anything that comes into contact with the skin in any way could possibly cause a small amount of the salicylate to be absorbed.. small amounts build up into large amounts....
    At home I would think this would probably not add to the sals load too much as I guess it would be very small amounts (it is possible to get too neurotic lol) but as you work with food all the time if you prepare food I would suggest that wearing protective gloves would be a good idea just to be on the safe side.. you can get really thin ones...
    HUGS Lindy xx
    • CommentAuthorTEDDY
    • CommentTimeSep 25th 2008
     
    Hi Mands

    Talking about being neurotic and paranoid its a good idea as Lindy said to wear gloves to protect yourself but please make sure they are plastic or vinyl and not latex. I have type 1 latex allergy causing anaphylactic shock and I always have to champion this subject so if you do decide on gloves chose anything other than latex ones. Also people who may wish to eat in your restaurant could have latex allergy so if you can get other gloves please do so.

    Like Lindy said we can absord sals via our skin so its not just eating them or using the products.

    Take care
    Teddy x
    • CommentAuthorTeefee61
    • CommentTimeSep 27th 2008
     
    Hi, I've just joined, and this is the best web site I've found so far.
    I'm British, 47 years old and I've lived in northern rural Portugal for over 20 years. The first time I became food-intolerant was when I got pregnant 19 years ago (huge hives all over my body and angioedema), then had anaphylactic reaction to aspirin. All these reactions disappeared when I miscarried, and resurfaced when I got preganant again, and again when I was trying for a second baby, so definately related to hormones, but not just. Also I've read there is a genetic connection, and actually my 1st cousin is also salicylate intolerant, and my sister is intolerant to loads of things including latex. My mother and grandmother also had food intolerances, but not salicylates.
    My hives resurfaced 9 years ago, disappeared when I took a mast cell stabilizer (cetotifeno), and reappeared in May this year. Except that I now realise that hives are not the only reaction I was having. Since going on a low salicylate/ amine diet, a lot of other things have disappeared too (tintinitus, muscle pain, arthritus, constipation, head fog, and lots of others):
    My biggest problem is that a Portuguese mediterranean diet is naturally high in salicylates (olives, tomatoes, spicy meat, grapes, etc.) also fish and eggs, which I also can't eat. Alternative ingredients can be very hard to come by. You could say that I'm allergic to Portugal, except that I love it.
    • CommentAuthorRita
    • CommentTimeSep 27th 2008
     
    Tee. Buuuumer. (That means that's really disheartening in American lingo)
    • CommentAuthorosromatra
    • CommentTimeSep 27th 2008
     
    Hello all, I am Melina, 26, first-time mom to 19 month old boy/girl twins. I am unsure if I myself am ss, but it's possible. I have bad tummy reactions to tomatoes and some fruits and basically keep a migraine. My daughter however is the one I came looking for help for. It all started when she was born- they were preemie, so I couldn't breastfeed them from the breast at first, so they got pumped breast milk. During my pregnancy, I had gestastional diabetes and wasn't allowed sweets for several months, so when my husband spotting a girl scout selling thin mints at the hospital, he surprised me with a box and I promptly set to devouring it. Well, Matilda developed bumps which the NICU was calling lesions, but they really only looked like pimple/whitehead type bumps. Her brother had marks as well, though they looked more like road rash. They suspected herpes and ran several tests that came back negative. By a week after their birth, I had polished off the thin mints, and Matilda's bumps went away. By now, she was also feeding directly from the breast often in addition to pumped milk. She KEPT getting these bumps (oddly, most often on her joints, especially on her toes/fingers/hands, and her mouth) and I kept a diary and eventually connected them to mint or if I had pepto bismal. So I stopped eating anything mint. I also checked the ingredients on the things I knew caused a reaction and "sodium salicylate" or "salicylate" were the only common ingredients. I mentioned it to the doc. The bumps mostly went away and it fell to the back of my mind. As a mom, a lot of things flee your mind, lol. Anyway, she and her brother were exclusively breastfed for 6 months and except for a colicky month which I never conclusively figured out why, assuming it was something I was eating, she was great. Then we started table food and it's been roulette as to what bothers her and what doesn't. We've been muddling through mostly, and by now the list of nonos includes most fruits, especially strawberries, tomatoes, pineapple, watermelon, cherries, pimentos, peaches, cantaloupe, muskmelon, olives, among others. Also, she seems sensitive to a point with milk. She seems to tolerate yogurt and cheese, but straight up cow's milk, maybe more than 4-5 ounces, and she's got bad diarrhea/upset tummy.

    I eventually did a websearch for "strawberry tomato mint sensitivity" and that led me here. She also has reactions to various detergents and soaps/shampoos/lotions and every time I check, yep, there are sals. So the pieces are falling into place. She has an allergist appointment Oct 7, which I understand may not bring any answers, but I look forward to it and am hopeful just the same.

    I really appreciate all the help everyone has given me for this! This is a top-notch forum!
    • CommentAuthorTEDDY
    • CommentTimeOct 1st 2008
     
    Hi Teefee

    Nice to welcome you to the forum. Its nice that you found it and that is has helped you. Glad that a lot of things disappeared when you went on the low sal diet.

    Its better to be allergic to Portugal than Scotland as I am sure it will be much nicer climate weather wise in Portugal!

    Take care and speak again soon

    Teddy

    Hi again Melina - wont be long till the allergist appointment now and hope all goes well with the appointment. Just think of all the questions that you want answered and write them down so that you dont forget anything. Will hear how your appointment went when I get back from my holidays.

    Take care
    Teddy x
  1.  
    My name is Tiffany. I live in Kansas and am a single mom to 3 girls, 5, 2, and 1. I got sick all the sudden last year, in June of 07, 3 months after my last baby was born. I started feeling strange personality wise. Shy to be around people. Unable to communicate or really get where people were coming from. I also started getting tingling in my brain, and achy ness on my neck and shoulders. I was 100% healthy before this. It progressively got worse. My husband and I separated last August. He was violent to me and now he's not in the picture anymore. Last fall my health got really bad. The burning and pressure was there constantly (in my brain), but mentally I feel like I died. My entire personality was gone. I couldn't communicate. I didn't want to be around anyone, even my kids. I felt insane. If you knew me at all you would know that my kids are my pride and joy. I used to get so much joy out of taking care of them before I got sick. I never missed a night of brushing their teeth. We used to snuggle all day. They were my life. But when I got sick, I had to force myself to be a mom. It didn't come naturally to me anymore.

    I couldn't work. But thankfully, God provided. Through the sale of our home, and unexpected help from family, I didn't have to work. No one knows the torture I have gone through in my mind. Only God and I understand. My family didn't understand, and I always tried to hide it and act like I was fine, because I felt very ashamed. I've cried out to God everyday to give me my mind back. But for some reason He wanted to wait.

    5 months ago, I was at church and a girl asked me, have I ever thought about MSG? I said no. So I began to look online at food related illnesses. Learned about gluten and casein, and how they are related to autism. I've been trying to eliminate things from my diet these past 5 months, but I knew that gluten and msg were not enough. I feel like God was trying to tell me that food was my problem. And He did 4 times, through the Bible. One day, I was in the bathtub, hiding from my kids and crying, begging God for help. At this point, I already felt that He was telling me it was food, but I needed more proof. I said, "Lord, if it really is food, I'm going to get out and open my bible up to a random page. If the first page I turn to mentions food 2 times, I will know. Please do that for me." SO when I got out, I opened right up to the book of Jeremiah. I searched both pages that were opened. Nothing about food until I got to ch. 16 verses 7 and 8. Both mention food. I got my confirmation. 2 times. No more no less. That was really encouraging to me!

    Anyway, now I am here, learning about Salicylates. I started the diet 4 days ago, and I am waiting to see if it works.

    By the way, I had an ELISA food allergy test done, igg, and found out I am allergic to 32 different foods. Not sure how accurate that test is though.
    • CommentAuthorTEDDY
    • CommentTimeOct 5th 2008
     
    Hi again Tiffany

    Not sure about the accuracy of these sorts of tests but you should be referred to an allergy clinic within a hospital to be tested properly for allergies and intolerances.

    You have also been through such a lot emotional wise having split up from your husband and been on the receiving end of violence. It does sound to me that you are also suffering from depression and this is only natural having been through what you have been through.

    It takes time to accept things that happen to us in life and wonder why they happened the important thing is to find out what is wrong with you healthwise and move on. Again easier said than done I know.

    You are doing an amazing job coping with the three girls on your own and especially as they are all so young. I am sure you are a most wonderful mother and I applaud you for that. Its not easy but try to speak to someone about how you are feeling and not try to deal with it on your own. Again all of your symptoms happened after you had the latest child and at 3 months old it could also be post natal depression which is severe in itself without food intolerances/allergies over and above this.

    It is important you speak to the right people and get help and not keep it all to yourself. We are only human after all and a problem shared is a problem halved so they say.

    I am glad that you have found the forum and at least this is also a way to release some of what you are keeping inside you. Take care and speak soon.

    Teddy from Scotland x

    ps You will know after completion the elimination diet if salicylates is a problem for you. Keep it up.
  2.  
    Thanks, but I'm not depressed. I am sick. The problem with talking to people about all of this is that they don't understand what I am going through. For some reason people assume to know what my problem is. No matter who I talk to, that's always what happens. That's why I say, only God understands. That is comforting.
    • CommentAuthorlindyd
    • CommentTimeOct 5th 2008
     
    I think I find other people more of a problem than the lack of food..
    the only place I feel "understood" is on this and the sulphite forum.. I would go potty without them lol!
    I think I am at fault too as this is so "normal" for me now and I have so much knowledge I tend to forget tht other people really don't understand.
    What makes me really cross is the people who point out how much weight I have lost and when I explain they say they wish they could have my problems for a few months so they could lose weight too.....
    Tiffany..
    About the IgG test.. if it was done by a reputable company then it should be pretty accurate..
    It does not mean you are "allergic" to 32 foods it means you are intolerant to them *at the moment*. True allergies are IgE allergies which are for life (like dogs!).
    IgG intolerances can be "forgotten" by the body after a period of time if you are VERY strict and eliminate each food for a period of about 4 months. I mean really really strict. not even a crumb of that food even hidden in another food.
    IgG intolerance are usually caused by having either a candida (yeast) overgrowth or a"leaky gut" so larger particles of the offending foods have entered your bloodstream and the body has seen them as "invaders" and set up temporary antibodies against them.
    If you have a naturopath or nutritionist you can see (or afford) to help you onto a healing diet then this is the best way forward.
    If not then I would advise taking some good probotics and digestive enzymes and working out a programme of totally eliminating your foods over a period of time.
    You don't need to do all of them at once.... Unfotunately this will take quite a long time for you. Pick a few of the foods (the ones that are most important to you) and TOTALLY eliminate them from your diet.. you will need to read labels really carefully as even a tiny amount can take you back to square one..and eliminate these foods for 4 months. Then you can retry a small amount. 4 months is the usual time it takes for an IgG intolerance to clear.
    I am doing this with wheat and oats at the moment.
    So you see their is hope.. you are not going to be allergic (intolerant) to the 32 foods for life but it will take some work on your part to clear them. But the most important first step is to heal your intestines so you do not get even more intolerances...
    The symptoms you describe could be causes by candida so I would advise you to do some reasearch on this and if you can afford it or your health insurance covers it to get some medical advice from a naturopath...
    Candida (yeast overgrowth) can be caused by antibotics .. you also possibly have hormonal inbalances after having your baby which won't be helping..
    KInd regards Lindy
    (ps I am qualified to give nutritional advice)
  3.  
    Thank you Lindy. I got discouraged over the weekend and went off my diet. I felt sorry for myself, and thought I would never be able to eat normal again. 4 motnhs is not that long.

    I too have lost a lot of weight. I'm only 107 lbs, but I have a big fat pudge on my stomache, that I didn't even have a year ago when my baby was 3 months old. Weird. I think it might be a hormone imbalance. I also have a lot of hair loss.

    Anyway, I did try the candida thing about a month ago. I took nystatin and followed a strict candida diet, w/ no fruit or sugar. I stopped after a month because I didn't notice a change, and the meds were starting to hurt my stomache.

    Anyway, thanks for the encouragement :)

    I am going to get a second igg test from a different lab soon to see if the results match up or not.

    I have read that mercury poisioning can cause my symptoms too. That really worries me because I have 10 metal fillings and would never get enough money to detox, plus it takes a super long time to detox from that. But again, I feel God is telling me it's just food, so I try not to think about that.

    I am back on my no salicylate diet today. I guess I'll know with in a week or so, if it is sals or not.
    • CommentAuthorwt
    • CommentTimeOct 6th 2008
     
    Hi Tiffany
    Hope you are feeling better now.

    You mention MSG in one of your posts and as a person with a big intolerance to mono sodium glutamate as well as bound glutamates I'm interested to know if you were intolerant and if so, did you eliminate msg from all your personal care products?

    Are you taking any vitamins, especially all the B's? You also need magnesium.

    God also showed me the way back to health. It's been four years since I started my journey.
  4.  
    I didn't notice a difference when I went MSG free. It may have helped, but my symptoms were still really intense even without it. No, I didn't eliminate msg from personal products. But I did brush with baking soda and used grapeseed oil instead of lotion, as I am doing now, since I don't want to pay high dollar for no salicylate products. I figure if it doesn't go in my mouth, and I rinse it off my skin, I'll probably be OK.
    • CommentAuthorRita
    • CommentTimeOct 6th 2008 edited
     
    Tiffany. I'm not sure, but are you saying that you are using something with grapeseed oil as a lotion? If you are, and you are trying to go low/no sal, then you need to stop using that product asap. The sals that come into contact with our skin are even more toxic than the ones we eat, since they enter our bloodstream directly via the skin.

    God has been my strength through this journey too.
  5.  
    Oh, I didn't know that. I used to use the grapeseed oil, but right now I am using safflower oil instead of lotion. Thanks!
    • CommentAuthorTEDDY
    • CommentTimeOct 7th 2008
     
    Hi again Tiffany

    Sorry if you have taken my message of support in the wrong way. It wasnt meant to be. Hope you find the answers soon.

    Take care
    Teddy
  6.  
    No offence taken Teddy! Thank you for your help :)
    • CommentAuthorTEDDY
    • CommentTimeOct 9th 2008
     
    Thanks Tiffany I didnt mean to upset you. I had severe depression in the past and I spoke about it some time ago on this forum and we try to explore all options on here so glad that I didnt offend you.

    The forum is great for just being able to talk to each other and before I found this forum with Beth and all the members I felt isolated and alone and thought I was the only person suffering from salicylate intolerance as I didnt even know what it was so it was such a Godsend finding the forum and I have come on leaps and bounds since joining. I am sure you will too and its just a great way of finding out about our salicylates issues.

    We all learn from one another. Thanks Team Sal

    Teddy x
  7.  
    Yes, I am so thankful for this website. It's only been 3 and a half days and I am feeling quite a bit better too.
    • CommentAuthorJ
    • CommentTimeOct 12th 2008
     
    Hello!
    My name is Jess, originally from KS.
    I have been enthralled with this page for about a week now and been reading up on the variation of sensitivities. I am really grateful that there are other understanding people because so few people comprehend how I could have severe reactions to "natural foods". My life changed for the better when I was 15 and went through the elimination diet. My entire family was Amazed at the difference it made on my attitude and extreme hyperactivity. As soon as I became an adult, I went on Aderall for about 3 days because I wanted so badly to eat what everyone else could, however, I quickly realized my mistake. It makes me really uncomfortable to ask what the ingredients are (especially because not everyone knows), but it is always better than waiting for the reaction. In addition, I have used Aubrey Organics shampoo and conditioners for over a year now. However, I have noticed after showers my hair is thinner at the roots and literally falls off. So, thank you for pointing out that Aloe Vera is on the higher end. However, now I need to locate a new conditioner (the Calenduala shampoo is fine YAY!!). I would be appreciative of any suggestions others may have, as I realize how long it takes to read every ingredient and find something that you are happy with. Please.

    Just when I thought I knew it all, you shared so much more information.
    Thank you.
    JSmith
    • CommentAuthorlindyd
    • CommentTimeOct 12th 2008
     
    Hi Jess
    Welcome!
    I'm in the Uk so can't help with the shampoo question but I'm sure Rita and other US members will reply and help.
    Please stay around and share your knowledge and experience with us.
    What is Aderell?
    HUGS Lindy xx
  8.  
    Hi Jess, I'm in Kansas :) Wichita. Anyway, the Cleure website has all kinds of salicylate free products. http://www.cleure.com/products.aspx?ID=grace
    • CommentAuthorJ
    • CommentTimeOct 13th 2008
     
    Thank you and I will take a look. Aderall is similar to Ritalin. It is prescribed to adults and children(!) for hyperactivity, however it is a stimulant and also contains artificial dye. I still don't understand the reasoning behind giving someone with ADHD a pill that makes them more hyper (it has to do with the synapsis in the brain). My mother intervened when I told her I had taken Aderall, and she became worried that my heart was going to explode because she hasn't seen me like that for some time.
    • CommentAuthorJ
    • CommentTimeOct 13th 2008
     
    This was off half a pill at the lowest dose.
    • CommentAuthormands08
    • CommentTimeOct 13th 2008
     
    Hi everyone! just thought id give you all an update. Well ive been on my ellimination diet for 4 weeks now and my skin is fantastic! It is very scarred from my last reaction but i have had no new sores in the last 2 weeks! i reduced my anti-hismtamines to one a day (the recommended dose) a week ago and i am doing fine, when i reduced them after the first week my symptoms got worse which made us think that my body had obviously gone into salicylate overload (well for me anyway!), i have finally realised that sticking to the diet entirely is the best option, last time i tried the elimination diet i started letting fings slip and before i knew it i was worse than id ever been.

    Was wondering if anyone could help me with this though-its something that has never happened to me before and i dont know whats going on!

    - i went out on friday night with my work colleagues to an indian restaurant-i was absolutely dreading it with spices being a big no-no but with it being a leaving party i really wanted to go.

    I ended up having a bowl of boiled rice-very exciting!

    Anyway about an hour later(about 10pm) i began to feel quite dizzy n my heart felt like it was racing. I could breathe ok but it just seemed a bit fast and like i couldnt control it, soon after i started with a really barking cough and i kept wheezing.

    I took a second antihistamine at this stage, by midnight my symptoms began to subside but then seemed to re-appear again about 5am.

    does anyone have any idea what could have caused this- my friends were obviously very worried and all we can think of is that it was caused through inhaling the spices and with me just getting over a cold and just getting used to being off the high dose antibiotics iv been on for the last 5 months, maybe my immune system is weakned at the moment.

    Also i was only having one anti-histamine a day- i had got up to 4 not long ago!

    Is it possible to have a reaction like this just from inhaling salicylates?!

    PLEASE HELP!!

    Mands. xxx
    • CommentAuthorRita
    • CommentTimeOct 13th 2008
     
    Hi Mands. Actually, it is VERY possible to have a reaction to the aromas you inhaled, especially Indian food. But it could have also been something in the rice. Was it fried, or maybe spiced with something you were not aware of. Hope you feel better and glad you are making such good progress.
    • CommentAuthorlindyd
    • CommentTimeOct 13th 2008
     
    Hi Mands
    I have sulphite and salicylate problems...
    I have definite problems from inhaled garlic and onions.. and spices ...there is NO WAY I could sit in an Indian restaurant.
    I realised some time ago that when my dh had a curry or garlic if I slept next to him I had a reaction - I was reacting to the fumes he was breathing out! My allergist confirmed that this is quite normal.
    If you can smell something then there are airborne particles which can be breathed in and reactions can be stronger from inhaled toxins and allergens as they go straight into the bloodstream via the lungs bypassing the intestines.
    I also react really badly to salicylates in perfumes and to things like carpet shampoo..
    HUGS Lindy xx
    • CommentAuthorTeefee61
    • CommentTimeOct 14th 2008
     
    I also react to smells. I don't know why, but tobacco smoke (even outside) can make me asthmatic. I have another strange reaction. Sometimes I can't even touch things: fruit on trees, (some vines that had been sprayed gave me instant fat lips. Who needs botox?) Also, synthetic fibres, but only sometimes (though what these have to do with salicylates I don't know).

    I did a stupid thing at the end of May. I painted an antique chest of drawers with insecticide to get rid of the wood worm, then left it in my bedroom. My OM thinks I nearly killed us with fumes. Probably all those toxins are still trying to clean themselves out of my system.

    Good news is that it really got rid of the woodworm : )
    • CommentAuthorlindyd
    • CommentTimeOct 14th 2008
     
    New fibres both synthetic and natural are "treated" with all sorts of chemical to make them look crisp and new (you can smell it) and should always be washed before they are worn. I guess even after washing some chemicals will remain in the fabric for a while..
    Unfortunately I sell clothing etc on ebay and spend quite a lot of my day surrounded by clothing both new with chemicals and 2nd hand which smell of fabric conditioner.. probably why I have a constant snuffly nose!
    As you have mentioned fruit has often been sprayed..
    Regretably many of us are chemical sensitive as well as salicylate sensitive...
    HUGS Lindy xx
  9.  
    Mands, that's great that your skin got better. Do you have psoriasis? I was just wondering if salicylates can cause psoriasis.

    Rice is high in lectins, I wonder if that's what made you sick?
    • CommentAuthormands08
    • CommentTimeOct 14th 2008
     
    Gosh!! i never knew it was possible to have a reaction just from inhaling salicylates!! It actually makes sense that it caused me to have breathing problems though, as you are actually breathing them in and like lindy mentioned they will pass from your lungs into your bloodstream when inhaled. i wont be going to an indian restraunt anytime in the near future-it was the first id ever been in and possibly the last!!

    No i haven't got psoriasis, i suffer mainly from urticarial rashes which 99% of the time end up infected as well.

    I would think that they could play a part in psoriasis though, even if they are not the cause, they may make the situation worse.

    Thanks for all your help everyone-your amazing!!!
    I thought i was going crazy, thinking that i could have a reaction simply from sitting in an indian restaurant-obviously this is possible.

    Mands.
    xxxxxxx
    • CommentAuthorTEDDY
    • CommentTimeOct 22nd 2008
     
    Hi Mands and Jess

    Nice to read your postings on the forum. I personally know that sals can be inhaled and I found this out when my daughter a long time back asked me to make them a curry. Just cooking it I ended up in bed for 48 hours and that was wearing gloves preparing the ingredients but the aroma must have done it so that Is how I know I react to just inhaling things.

    Take care

    Teddy x
    • CommentAuthoramandahv37
    • CommentTimeOct 25th 2008
     
    Hi Lindy

    Sorry I have only just seen your question from September - woops!

    Yes I changed my aromatherapy oils because many of them were in an almond, apricot or grapeseed carrier oil. Now I use sunflower as a carrier. For essential oils I use lavender, eucalyptus, rose, jasmine, rosemary, geranium and ylang ylang. My friend dowsed the best oils for me to use with her pendulum, it all sounds a bit cosmic but it really worked and several times since has been used to work out foods incredibly accurately.

    My distance learning tutoring is with The Open University and I recommend them as a great employer - check their teaching vacancies on: http://www3.open.ac.uk/employment/associate-lecturers/

    Are you (or anyone else here) on www.facebook.com? There are mutual support groups there on food allergies. Look me up, if you like (Amanda Harrington-Vail).

    Love Amanda xx
    • CommentAuthormands08
    • CommentTimeOct 30th 2008
     
    hi everyone!!

    was just wondering if anyone knows what pain killers are ok for salicylate sensitive people?? I know Asprin is obviously a huge NO NO, but are paracetamol,ibuprofen and codiene ok??i thought ibuprofen was ok but when i was in hospital one of the consultants said he thought it contained salicylic acid. I also have a problem with caffiene which seems to be present in some brands.

    Also i am on facebook aswell Amanda so i shall have a look for you and some of the groups.

    Hope everyone's OK!

    Love Amanda. xxxxx
    • CommentAuthorlindyd
    • CommentTimeOct 31st 2008
     
    Hi Amanda
    Ibuprofen and other NSAIDS are not actually salicylates like aspirin but are so similar chemically that people who are salicylate sensitive are advised not to take them...although I have read during my research that not all salicylate sensitive people have problems with NSAIDS.
    Having said that I personally would not risk trying them and my hospital allergist has recommended avoiding them.Ibuprofen and NSAIDS can also cause gastric problems so are best avoided.
    Paracetamol (acetamophin US) is generally considered to be OK for people with salicylate sensitivity but as it is detoxed along the same pathway as sulphur it poses a theoretical problem for people who are sulphite sensitive.
    Some others on the sulphite site take it without problems but in the last 18 months since the escalation of my problems I have not (yet) had sufficient pain (except for one 3 day headache which I suffered rather than risk the painkiller) to need to try out the paracetamol.
    Codeine Ditto....this is a opiate...
    If a painkiller is essential then paracetamol is likely to be the best option..I have a packet of Panadol in my bag "just in case". Cheaper brands often contain metabisulphite so it is best to read the packet insert before taking any...the mot expensive brands inclding Panadol and Anadin paracetamol seem to have the least "fillers".
    I am sure other here will let you know if they have taken paracetamol ok.
    HUGS Lindy xx
    • CommentAuthorTeefee61
    • CommentTimeOct 31st 2008
     
    I use paracetamol. I have had bad reactions to NSAIDS, so they're also out of the question for me.
  10.  
    I have always used soluble paracetamol and continue to do so with no ill effect.

    Amanda (mands08) see u on facebook!

    Love Amanda xx
    • CommentAuthorAndy
    • CommentTimeNov 14th 2008
     
    Hi , my name is Andy.. I am 48 years old female and live in the Boston area... I have had the ss for 6 months.. My allergist says he sees alot of this sensitivity in middle age women entering menopause.. I have always been able to take Advil and Aspirin.. and I love almonds... can't take any of them anymore.... But, at least I know what it is and everything is under control.. After reading some blog entries, I figured out why my lips were raw all the time... seemed to be the toothpaste.. I bought some from the ss website and all is good.... Chinese food sometimes give me hives.. not to bad though... I can now chew gum once in a while without having chapped lips... yee ha..
    what is weird is that I started with this ss when I also started with acid reflux.... I never had heartburn before, maybe it was just a coincidence...
    • CommentAuthorlindyd
    • CommentTimeNov 14th 2008
     
    Hi Andy
    Welcome!
    I'm in the UK...My ss really took off as I went into Menopause too.. although I now realise that the itching I have had for many years and the food faddiness I had as a child was also mild ss...(I wouldn't each a range of foods all of which I now know contain salicylates and sulphites..)
    Digestive problems are part of ss symptoms...quite a few of us also get them...mine are stomach cramps and upset bowels but my daughter gets the acid reflux as does my mother (who is also ss and sulphite sensitive but refuses to admit it and continues to eat the wrong foods and coughs, has asthma, itchiness and acid reflux..)..
    There is a lot of good info on this site and do spend some time reading back over the old postings.. I spend ages when I first came here but learned a lot..
    HUGS Lindy xx
    • CommentAuthorGemstone
    • CommentTimeNov 20th 2008
     
    Hello, my name is Gem, I'm 22 and live in QLD Australia.
    I go to uni, studying Creative Writing and Counselling, and aspire to being an author. I'm very creative and a bit odd- very monthy python sense of humor.

    My story:
    I've always been pretty sick as a kid, then when I turned 20 I had a seizure (after smoking lots of weed for a few years... which happen to be very high in salicylates) and after that started having these weird shaking fits, where my brain went all fizzy and hot, and my hands cold, my face went white, red and blue, vomiting, sweating etc.
    I spent a year in and out of hosipital emergency wards where doctors said I was fine, causing my family and boyfriend to yell at me and tell me I was just faking it... not the best time for me.
    I had no clue what was up. So I tried to be healthy, quit weed and alcohol, exercised, ate lots of salads with cucumbers, tomatoes, basil etc. Oh and tons of raspberry smoothies. Heh.
    But instead of getting better I got worse. My body would go numb, staring in hands and feet and travelling up my body, it felt like I was about to die. It hurt to hear people speak, my brain couldn't make sense of tv shows etc. For days afterwards I felt like a wreck, I worked in a video store and couldn't remember how the alphabet went to put videos back on the shelf!
    Eventually I went to a naturopath, and within 10 mins of talking to me she said "Hmm... maybe you have a salicylate sensitivity." And gave me a bunch of info, and I did my own research.
    At first I became very depressed as I LOVE cooking, esp italian, and my favourite food in the world is raspberries. The diet seemed so limiting. But eventually I got excited about making new recipes, which I will have to share with you all, and got used to it. I am very thankful for garlic and parsley and limes.
    It's been awhile since the early days, and now I haven't had a serious reaction in many months. I got pretty sensitive to other peoples perfumes and shopping malls for awhile, but that seems to have settled a little, though can still affect me.
    The only thing thats hard now is when I go to friends and familys houses and they dont understand how serious the allergy is, and think I'm being paranoid about cooking everything myself and reading the labels etc. I just don't especially want to die, but they don't really get that, ah wells. I've come to terms with it all now though, myself, and waited till I wasn't bitter about it to join this community. Also I think it's rad that the diet forces us to be really healthy and get all our nutrients etc.

    Anyways thats it from me, I look forward to sharing stories, recipes and tips with you all,
    Gem.
    • CommentAuthorTeefee61
    • CommentTimeNov 21st 2008
     
    Interesting story, Gem. I hadn't thought about weed being high sal (but it makes sense). It's also amazing how much damage we can do to our bodies when we are young and just doing crazy teen stuff (even when we're not teens any more). I often wonder if my crazy days have left a permanent mark.

    I get depressed with the diet, especially as I live in a mediterranean country (rivers of wine, olive oil and tomatoes, all high sal; and fish, high sulphite). but I have moments of inspiration in cooking with the few ingredients I'm allowed.

    Luckily, my husband is a GP, so not only has he saved my life on occasion (very romatic), but he gives some credulity to my stories, so I'm taken seriously.

    Welcome to our community

    Tx
    • CommentAuthorlindyd
    • CommentTimeNov 23rd 2008 edited
     
    Hi All
    Change of subject for the moment.. this seemed to be the best place to air my concern..
    As the knowledge base of this group builds up I am becoming increasingly concerned about the fact that Beth (who runs this site) no longer seems to be around. She last wrote on her blog in January and I think she was chatting on the forum for a little while after and then she seems to have disappeared.
    The reason I am concerned is that I know that websites cost money to host and if Beth isn't able for some reason to upkeep this site then at some point it may disappear along with all of the accumulated knowledge here..and we will all lose touch.
    I am happy to donate (there is a donate button at the top) but without knowing if Beth is still around I don't want to unless I know the dontation will be received by someone..
    Rita and WT you have been around here for quite a while now.. do you know anything about how this site is run and who it is hosted by?
    HUGS Lindy xx
    • CommentAuthorTeefee61
    • CommentTimeNov 23rd 2008
     
    I was wondering about this too, Lindy. Pity there is no address for Beth! I might even copy-paste some of the research here into a word file.

    Tx
    • CommentAuthorRita
    • CommentTimeNov 23rd 2008
     
    I do know that Beth is doing fine and is out and about exploring the world and enjoying her friends and family. Though I feel she has decided that she has nothing more to contribute to the forum conversations, I suspect she drops in from time to time to read a line here and there but I think she has moved on to other projects and I really don't know how long she will decide to keep the site running. If you e-mail her through the contact page, I'm sure she will eventually answer your e-mail. Just keep trying.
    • CommentAuthorRose
    • CommentTimeDec 10th 2008
     
    Hi,

    My name is Fiona, I'M 32 and live in Basingstoke, Hampshire, England. I have two children, my son is 13 and my daughter is 9.
    I was diagnosed with SS in September this year, after 9 1/2 years of being unwell. I have been following this fantastic web sight ever since and have found it very helpfull.

    For years I have seen doctors about my other symptoms ie memory loss, brain fog and so on, only for them to dismiss them as not being allergy related.
    I am also a hairdresser. I'm sure you can imagine all of the chemicals in my face every day and the effect it has had on my health! I am very interested to hear about everyone elses work on this site and how they manage.

    I got my first mild reactions after the birth of my son. I would develop hives every now and then and had a reaction to Femodene (contraceptive pill). During my second pregnancy I remember having constant sinus pain. After the birth of my daughter I had severe pain in my joints and was testing positive for rhumatoid arthritis, I then went on to having steroid injections into my right hip that had caused me problems since I was 12. A few months after this I developed a cough that would not go. The doctor then said I had asthma, prescribed some inhalers and some antibiotics for a chest infection. After taking lots of antibiotics and the infection not clearing my body decided to become allergic to the two week course of amoxicylin that I had just finished. Rash, asthma, swollen body, eyes, lips etc followed by my childrens dad finding me callapsed on the bathroom floor ( I fell off the toilet, bum in the air and pj's round my ankles.........not a pretty sight!)

    I have been on the elimination diet since October, its hard, but it is working, if it wasn't for this site I wouldn't know what to cook!

    I also take: singulair (montelukast), ventolin inhaler, seretide inhaler, qvar inhaler (specialist said ss sufferers respond well to this inhaler and it is working well for me), loratadine tablets and have an epi-pen (not to sure about as I read on this site that it may contain salicylate, if so is there one that we can have?)

    I read on here before about mercury thermometers......................I also broke one/two as a child and played with the mercury! It broke whilst taking my dolls temperature! I also read about the theory on appendix, I also have mine and almost had them removed as a child.

    I have a theory on gall bladders, as my cousin and sisters allergies have improved since they both had theirs removed (they both had severe allergies in the past and both have asthma).

    Sorry this is sooo long, but thought I should introduce myself! x
    • CommentAuthormands08
    • CommentTimeDec 10th 2008
     
    Hi Fiona,

    nice to here from u and ur experiences so far!-gosh falling off the toilet, cant be good-lol!

    I also found the diet really really hard but eventually i did get used to it and when u notice improvements it really spurs you on. My skin condition had totally cleared up within 3 weeks of starting the elimination diet, i could see a reduction in new lesions after just a the first week!

    I work in a restaraunt/cafe-Yeh ,not ideal i know-but i love my job!!

    I cope quite well there really as i deal mainly with the customer side of things rather than just handling food but i always glove up when im dealing with food.
    It does come with its problems vo-like the fact tht we had wine out on two evenings last week,when i went in the next morning i lasted 20 mins b4 goin into anaphylaxis. We dont actually sell alcohol though so this isnt usually an issue thank goodness!!

    Its also awful when the rest of the staff r trying all the new products and i cant! I make them tell me tht everything tastes horrible n tht im not missing out on anything-lol!!

    I take desloratadine daily and carry epipens, only been injected with adrenaline once but didnt suffer any symptoms tht i wud usually suffer from salicylates (urtucaria/skin probs)

    lots of love
    mands
    xxxxxxxxxxxxxx
    • CommentAuthorlindyd
    • CommentTimeDec 10th 2008
     
    Hi Fiona
    Welcome to the forum... I also live in Hampshire! Did you go to Southampton General for your diagnosis?
    I also took Femodene for years...
    Although I have had mild ss since childhood my symptoms really increased when I came off the pill at 50 and after a few months of painkillers and antibiotics for botched dental treatment...
    Now you have introduced yourself do join us in the chats :)
    HUGS Lindy xx
    • CommentAuthorednashedna
    • CommentTimeDec 13th 2008
     
    Dear Fiona,

    Hello! I am on the site mainly for my ss children but am beginning to have to face up up to it being me as well!

    I was really interested to hear about your theory on gall bladders. Especially as a lot of people have trouble with fats on this site - and my friend who I think is ss has gall bladder trouble. Sometimes mine is sore...

    I wonder if anyone else will come back to you on this one. I watch with great interest!

    Love,

    judithxxx
    • CommentAuthorTeefee61
    • CommentTimeDec 15th 2008
     
    Hi Fiona,
    Welcome to the site! You live just up the road from my UK family! (I live in Portugal).

    An epi pen uses epinephrine (adrenaline), a hormone and neurotransmitter, which allows your body to react when it is overcome by analphylactoid reactions. I don't think salicylates are added to them in any form. They're only for emergency use, so I hope you don't have to resort to this! I never used mine, and ending up throwing it away. (The only anapylactoid reactions I've had were in the hospital).

    I'm also interested in the gall bladder theory, but I'm not sure how it would connect. Our problems stem from a lack of ability to metabolize salicylates, probably through the lac of an enzyme. As far as I can understand from my reading, salicylate sensitive people may have other underlying problems. Mine was first triggered by pregnancy, but a later episode (it comes and goes, a year at a time) I had appendicitis, and when that was removed, my allergies went away again for a few more years, resurfacing with psychological stress. Crohn's disease and other intestinal problems can also be connected. So I think it's complicated, and I doubt there is one single trigger.

    It seems that, apart from the low sal diet, other factors to help are probiotics, an omega 3 source, and vitamin supplements. Relaxation exercises may also help.

    Good luck!
    Teresa