Good luck Lindy we will hear how you do.
Take care
Teddy x

Well 24 hours and 3 capsules later later all is fine...
I was a little concerned as someone on the sulphite forum had a bad reaction when he took it so I kept my epipen and the phone near for a while when i took the first one.
I think his reaction may have been an anxiety one as I had to stop myself going into a panic attack with a lot of strict self talk!
Now I know I can tolerate it ok I will do some experimenting with some high phenol/sals foods over the next few weeks.
My insides definitely felt much much better all day yesterday and this morning so even if it helps me digest /utilise my food better then that is good even if it doesn't stop my itching etc!!!
I realised after posting that some new lurkers may not know what I am going on about and what No Fenol is
here are two links:
http://www.enzymestuff.com/nofenolfile.htm

http://houstonzymes.com/mm5/merchant.mvc?Screen=PROD&Store_Code=hni01&Product_Code=HN003s&Category_Code=nof

There is also a product called Phenol Assist which is similar
http://www.kirkmanlabs.com/products/enzymes/phenol/phenol_bp835.html

Rita.. I see from old posts that you/WT have taken No Fenol??
Do you still take it? How did you get on?
I think there has been some controversity in the press in the distant past about No Fenol because they mistakenly assumed that it "eliminates" phenols... I guess the name is misleading as what it actually is supposed to help you do is "use" and assimulate phenols safely by breaking them down into "safe" components that the body can handle. I think the name of the Phenol Assist product is more descriptive,

I will keep you informed.
HUGS Lindy xxxx

Cool.. hope I will be able to eat some of my garden raspberries then!!
HUGS lindy xx

Lo all!
I have been using the No Fenol for about a week now and am pleased with it.
I am taking it along side probiotics and am really pleased with the results so far.
I have had no ill effects at all from either.
I am taking the No Fenol everytime I eat fruit/vegetables or something containing carbohyrate (so each time I eat lol) At meal times I have a whole capsule and if I have a snack I open a capsule and sprinkle a little on the fruit etc. It is totally tastless.
My unhappy stomach is now a much happier stomach....the "kicked" feeling has gone and I have lost most of the bloated gurgling feling I had and my bms are more normal (sorry - too much information! )
Best of all I feel so much better ... how can I describe it.. calmer? steadier? more "normal"?. I can see why it helps kids with ADHD, it has certainly "normalised" my mood.... It is very difficult to define but I feel like more like "me" again and am not getting wound up and upset about things.....
I ate some green beans the day before yesterday which have in the past given me terrible stomach ache and back ache and all I had was the merest hint of a stomach /back ache. Next time I will increase the No Fenol I had with them as it wasn't a full capsule to see if this helps further.
On the "allergy" side... I still have a constant stuffy nose, I had mild itching from the carrots (salicylates) I had last night but the itching was much milder than it normally would be.
According to the reading I have done the No Fenol seems to be very safe to take and if you take more than you need the body just excretes it as being and enzyme it is only activated when it meets the substance it is supposed to work with. Otherwise it stays inert and passes out of the body.
It works on the cell walls of all carbohydrate foods including fruits and vegetables (but not on proteins) to enable the body to process phenolic foods better.
I am intending to continue with it and try out different foods including some I know I have problems with. Raspberries are next on the list Teddy!
I am doing a lot of research at the moment and there seems to be a lot of info around indirectly linking sulfite/salicylate/ phenol/liver/ allergy/chemical sensitivity/ thyroid problems etc etc to leaky gut and candida problems so my aim at first is to work to "heal my gut" to see what effect this has on my sensitivities.
My next supplements are to be milk thistle and glutamine.
HUGS Lindy xx

Lindy,
Been reading your posts and there is so much in common with the effects I have been having too. I also suspected leaky gut syndrome was perhaps my problem. Hives and brain fog every day. Since sticking to the strict elimination diet for two weeks, discovered how much better I felt after four days, so continued. Started adding back on a three day basis after that. I discovered that coffee (even de-caff) gives me headaches. Unfortunately hives have been with me all through the non sals diet, so now at a bit of a loss to know what to think. Amines I suspect as well as - sulphites - (make me cough). I will try and find No Fenol and see what happens. Thanks for that. I feel that you are on the right path working to heal the gut. Probiotics have now become part of my routine too. I'll be interested to see how you get on with milk thistle and glutamine. We can all learn from your research. Thanks again.
I discovered that the drug the dentist gives to me gives me migraine the following day. Will have to ask what he gave to me on Friday. Luckily it was'nt a bad one - vision problem for 15 minutes, followed by a light headache for about an hour.(Had a root canal, so injections unavoidable).
Good luck with your trials.
Wendy

Windy, Lindy, Cindy........Just thought it was fun to say. Looks like ya'll are on the right track and on your way to improved health. Good for you! Lindy, I didn't know that the body excretes the excess no fenol enzyme. Interesting. Be careful with the milk thistle, as I remember reading that it containes salicylates, though I don't know how much.

What antidote injection? my doctor told me anapens are the same as epipens and ana pens are not available in the US....she said I am fine with epi-pen..hmmm...

I've been reading this site for a while but only just got an account. My no-fenol arrived in the post this morning. One of the main things that I want to use it for is so that I can have a cup of tea. However I'm not sure this will work as enzymes are inactivated over 60 degress (C). Has anyone tried it for this? Did it work and how did you take the enzymes (powder in cold water before hand?)

lindyd

Have you any update on using the No -phenol are you still ok on it

Kind Regards

Terry

Pardon my ignorance, but what are plant phenolics and how do they relate to salicylate sensitivity?

I made a post a few days ago about my AAT appt and how I've kinda come full-circle back to the sal-sensitivity, and plant phelolics and glutamates were some of my other problem areas.

Just trying to make sense of this mess--trying to get all of these things treated so I can eat and feel normal! It's pretty much impossible for me to avoid the foods I tested allergic to last April, AND all of my newly discovered stuff...:0/

HI Lindy

What results did you have with milk thistle..?? \Do you still take it?? With the no phenol enzymes.?? Are you still just taking the Houston?? Have you tried the Kirkman to compare???

My liver and hormones have gotten very bad again , since going off of the milk thistle seed last spring .. ie that was before I tried going sal free. I sure would like to hear good news that it is alright .. wouldnt we all.. sigh//

nanci

Hi Sylvia & Nanci
Sorry I didn't try the milk thistle.. got put off by the suspicion of sals in it..
I take the cellulose version of no Phenol - I still take one capsule before my main meal and split one at other times..
No I haven't tried the Kirkman version as I got on ok with the Houston ones :o)
Lindy xx

I was surprised also that No Fenol had coconut in it.. and why I stuck with the Phenol Asssist which works slightly.. ie dampens the reactions so that when I take a supplement that I really need , I can get away with it.. There are apparently ways of removing the sals even from high things like coconut.. but I have not tried the No Fenol to know for sure.

I phoned a company called Olympian Labs about their vitamin products which they claim to be sal free.. one had cherry flavour , another lemon.. They said they stood by their products .. I have just ordered alpha lipoic acid fromt them that ordinarily has bothered me ,, but it may not be from sals as I am also amine intoelerant .. and will give it a try in a month.. after this terrible crisis I am going very slowly..

What does the cargest do for you Sylvia?? Is it just for carbs?? Have you found one for proteins or fats??

nanci

I tried milk thistle and it is a no go.. I am getting better at being in tune with my reactions.. it only took a pinch to feel the affects....

nanci

Hi Lindy /Rita, I'm just starting out with digestive enzymes having read a good book called 'Enzymes for Autism and other Neurological Conditions' by Karen DeFelice (same lady who helps run the enzymestuff.com website). I am one week in having started as recommended in the book with LACTO, made by Enzymedica, as this is a mild broad spectrum enzyme product, and am next going to add in a product which also contains proteases to break down proteins (they recommend GlutenEase). I also started taking a probiotic (Culturelle) at the same time, and in the last two days have added in No-Fenol with veggies and fruit.
I have had no major reactions, but my head does feel a bit swimmy since starting the No-Fenol, however this could also be due to the increased phenols I am putting into my body and perhaps not compensating enough with the enzymes. I have a slight head ache now and last night my mind was racing a bit when I went to bed and had to work hard not to panic and try to relax enough to go to sleep (my usual sals etc reactions are almost exclusively mood/anxiety related) -but I understand that these reactions could be part of the process of detoxing and kick-starting a dodgy digestive system so I'm not too concerned yet, especially as they have been fairly mild so far. And on the plus side I have felt less sleepy today than usual.
Anyway, the reason for my post was to ask a few questions as you are a good few steps ahead of me. My questions are: 1. If you still use a probiotic which brand do you use and are you happy with it? 2. (for Lindy) How are you finding Trienza? 3.Overall to what extent has taking enzymes helped your tolerance to foods? 4. Would you say that you feel that this process is actually helping to heal your gut and resolve underlying problems, or do you feel that it is a just a temporary fix?
Many thanks in advance for your comments. I am very excited about the enzyme possibilities, but I don't want to get carried away which is why I am interested in finding out how things are for you a little way along the line.
Best wishes, Holly x

Hi Holly
I tried 4 brands of enzymes before I found a brand that I can tolerate (Kirkmans Phenol Assist). They make a significant difference to how many and how much sals and carbohydrate food I can tolerate, but are not a "magic" fix for me. I would suggest trying a few other brands if you are getting symptoms because the Phenol Assist results in no symptoms at all for me - the other brands all caused problems that became worse as I increased the dose.

Kind Regards
Marie

Just to add about the Phenol Assist Enzymes..

They also help with destroying the bad candida cells.> THey break these down as well as the sals. Taken away from a carbohydrate meal.

My candida is much better .. I do take alot each day though/.. 6 with my supplements in the am. And 6-8 with each meal to help with the millet and rice.
If they were only stronger then maybe I could add in another vegi other than my lonely celery ... sigh..

Hi Nanci
Have you tried choko ? That is my staple vegetable - and you can do a bit more with it than celery
Kind Regards
Marie

My grandson has Aspergers (the high end of the Autism Spectrum). I have maintained for some time that his condition is linked to mine...
My understanding of genetics is basic (my daugther is doing a Science Degree which includes genetics and I have her books as she finishes with them..
My basic understanding is that we are all born with different genetic tendencies towards certain conditions (autism may be one) but it is lifestyle and enviornmental factors that "turns on" specific genes. ie we could be born with a tendency for cancer/heart disease/autism etc etc, however it is only if the right "trigger" occurs we we develop the conditions we are predisposed to... This explains why some people can smoke all of their lives and not get lung cancer but others do...if you do not have the genetic predisposition you will not get it..
The fact that we are becoming more and more exposed to potential triggers due to enviromental chemicals, lifestyle etc would mean that more people will go on to suffer from conditions that they have a genetic tendency towards..
Lindy xx

Hi Nanci
Choko is easy to get at any supermarket or fruit and veg shop in Australia. It's also known as chayote (sechium edule). It is native to central America, Mexico and the West Indies. It is a pear shaped green vegetable that grows on a vine, has a single soft seed and a pear-textured pale green flesh. The taste is bland - so it can be used in both savoury and sweet dishes. It is a good source of vitamin C (6mg per 80g) and in most climates is available all year round.
Kind Regards
Marie