Not signed in (Sign In)



Vanilla 1.1.2 is a product of Lussumo. More Information: Documentation, Community Support.

Welcome Guest!
Want to take part in these discussions? If you have an account, sign in now.
If you don't have an account, apply for one now.
    • CommentAuthorTOMATOES
    • CommentTimeMay 2nd 2007 edited
     
    Hi I'm new and have been diagnosed as suffering from saliylate hypersensitivity and i have done a 4 week elimination diet with a dietician and i'm currently reacting to tomatoes, onions,peppers, and garlic. I am also now trying vegetables that i have never eaten before and finding it very hard to do it alone now that i am no longer with my dietician.
    I am currently waiting for my immunologist to send me an appointment through the post to see what happens next. My main problem is finding recipies that dont contain any of the offending foods,can anyone help me please
    • CommentAuthorBeth
    • CommentTimeMay 2nd 2007
     
    Hey, welcome to the site! There are a bunch of recipes up on www.salicylatesensitivity.com (although I need to get some more posted up there soon). But, one of the best things I've learned is how to substatute ingredients in recipes - I often take a recipe that calls for onions (something I react to) and instead I use a little leek (something I don't react to). Somethings like garlic and peppers you can just take out of recipes without it changing the basic recipe all that much. Tomatoes are more difficult as they are a base for many recipes but I just avoid recipes that would call for them - i.e. I make white sauces for my pasta instead of tomatoe sauces and make chicken broth based soups instead of tomatoe based soups and things like that. Once you start playing around with recipes it's actually a lot of fun to take a recipe you love and substatute or take out ingredients you can't have and still make a wonderful meal can be challenging but also very rewarding. Good luck!
    • CommentAuthorRita
    • CommentTimeMay 2nd 2007
     
    There they are again. Onions, garlic and peppers. It is seeming to me, that many of us with ss are also showing sensitivity to sulphites. I just did a study on foods containing sulfites. Some of the most popular offenders would be onions, garlic peppers, eggs, cheese, chocolate, soy, wheat germ and maple syrup. What does ss have to do with sulfites? Well, according to one dietician, ss people end up with a build up of the amino acid cysteine in their system, somewhere. But I know that cysteine is made up of sulphur and other components. So if we already have an overload of sulphu in our systems, this could be a reason why we would be reacting to sulphur containing foods. Just a hypothosis. I know I react to eggs, garlic, soy and maple syrup pretty badly. I can tolerate onions, cheese and wheat but know they still affect me.

    If you really can't give up your tomatoes, you can try organic tomato sauce, without the added citric acid and flavors. I can usually get away with that. I can also tolerate fresh roma tomatoes which are way less acidic than regular tomatoes. Also just try lowering the amount of spices you use. I used to rely heavily on salt, but know I am learning to appreciate the natural flavors in all foods without covering them up. Before, I couldn't dream of eating a plain salad. Now the flavors of the lettuce, carrots and other ingredients just come jumping out at me! Yum. You do have to spend time weening yourself from all the spices, though.
    • CommentAuthorTEDDY
    • CommentTimeMay 2nd 2007
     
    Hi again Rita

    Just read your article above and it is interesting to me as through the salicylates I thought I was okay to eat onion and garlic but couldnt understand why I felt unwell when I ate them - so if you are saying they have sulphites again does that come under my sodium metabisulphite allergy. My appointment with dietician and consultant is on the 23rd of this month so I will know more then. Funny when you mention salt intake - I cannot tolerate salt [not from any diagnosis] an example of that is if I ate a chip previously when someone had a packet of them if there was salt on it and I tasted it I would actually vomit. I have not been diagnosed or told anything about salt intolerance but I will mention what happens when I go to my appointment.

    Thanks for info Rita
    • CommentAuthorMarie
    • CommentTimeMay 2nd 2007
     
    Teddy,
    It could be the stuff in with the salt rather than the salt itself. Or whatever it was on (crisps are potatoes, right?). Here a lot of salt comes with flowing agents in it that don't seem to be too healthy. My spouse's table salt has calcium silicate, dextrose, and potassium iodide in addition to just salt. I also believe potatoes are high in sulphites. Plus a lot of restaurants/commercially produced things use seasoned salts rather than just salt, which means all sorts of additional spices liable to be high in salicylates. The ones I've inspected the ingredients on often include paprika.
    • CommentAuthorTEDDY
    • CommentTimeMay 3rd 2007
     
    Hi Marie

    I will ask about salt when I go for my appointment. I better start writing all these things down as I have waited so long for this 1 hour appointment I dont want to miss anything out. At the end of the day we probably have to become our own experts but at the moment I am just learning what I can from everyone on the forum. I just know that I really cant tolerate the taste of salt. I personally never add it to anything [other than boiled potates - a tiny little drop - dont know why - probably habit more than anything] but if I eat something that someone may have sprinkled salt onto I just cant tolerate it YUK"!"""
    • CommentAuthorBeth
    • CommentTimeMay 3rd 2007
     
    Marie, good call on the salt, they do add a lot of things to salt. Pure salt shouldn't be a problem it's all the stuff they add that can be. Also, potatoes do not contain sulfites - at least not fresh potatoes. What does contain sulfites are frozen potatoes, potato flour, potato starch, and dehydrated or dried potatoes - they add sulfites to these to preserve the white color. Check out this site for some more info (ps. it's not the only site that mentioned this) http://members.aol.com/nosulfites/potato.htm
    If you can't tell I started doing some research on sulfites - VERY interesting...
    Here is a list of foods containing sulfites that seems pretty good http://members.aol.com/nosulfites/knowing.htm
    • CommentAuthorTEDDY
    • CommentTimeMay 3rd 2007
     
    Hi Beth

    Thanks for these two sites. Having recently been diagnosed with the sodium metabisulphite allergy and putting two and two together I just wonder that if the excessive amount of diet coke I used to drink prior to be warned to stop drinking - was the culprit that caused my sm allergy in the first instance. I suppose we will never know the answer but it does make me wonder. Afraid there is nothing I can do about it now other than learn what it is in order to safeguard myself going into anaphylactic shock due to sm.

    I cant wait for Rita to put the site on where she warned about the epipen as unfortunately for me it is in my epipen but all I have been told it to alert emergency services but still administer it in the interim and they will give me something to counteract it. I am afraid that I am not all the confident about this and I will definitely be bringing it up with the consultant on my visit at the end of the month. I dont think a one hour consultation will be long enough as my list is ever growing. I think it is disgraceful to be diagnosed with this and just send away and told to wait all that time till appointment. Luckily for me I have not gone into anaphylactic shock in the meantime and hope to God that I don't. I am not too pleased that this is the case but I did hear that in the US they have an equivalent called anapen but I dont know in and outs of that. If that is the case I will be asking to have an anapen instead. Will keep you posted after my appointment.
  1.  
    Hi Teddy- just read your comment about diet coke starting your SM allergy.

    My allergy kicked off in my teens. Guess which drink my mom would only keep in the house? Yep, diet coke.

    That stuff gave me a migraine every single week of my life during my younger years. Literally, 2-3 glasses a day, every day. In retrospect, I'm amazed I drunk it. These days, if I so much as sip a diet drink, I can taste the aspartame in it. Yuck!
    • CommentAuthorTEDDY
    • CommentTimeMay 7th 2007
     
    Hi Lena and welcome to Beth's fantastic forum

    If only we knew all of this information before but hey we know now and having a forum like Beth's salicylate sensitivity site is wonderful and we can all learn from all the postings that are put on by others. Before I found the website I was in the dark and I am trying to learn as I go along and start my elimination diet very soon 23rd of this month and counting down the days! I am excited about it and looking forward to what I hope is positive outcome. I just want to be pain free and I would also be amazed if I could cut out some of the medication I have to take for multiple allergies etc. So hello and hope you do well on your elimination diet. Nice to meet you

    Teddy
  2.  
    Hi Teddy!

    Finding this site was a bit like an episode of Lost (everything happens for a reason!). It actually started with me picking up a tin of chickpeas and reading the words 'contains sulphites'... then I checked out what sulphites were, then I googled Aspirin allergy, and eventually I washed up here :-) Salvation!

    Hope it goes well for you on your elimination diet! It's a shame that these sensitivities aren't covered more in the press- in a way, we're probably lucky our reactions are so extreme- this way we have a massive kick up the backside to make a change to our diets to get to the root of it. How many people suffer from lesser reactions, who may suffer their entire lives without knowing it? Crazy!
    • CommentAuthorTEDDY
    • CommentTimeMay 7th 2007
     
    I know exactly what you mean sensitive spider - at least we have found out about it now and found Beth's forum and we can do our best to change things to make our lives more comfortable - can't wait to get started. I actually got Beth's forum site from Foods Standards Agency when I complained to them about allowing preservatives etc in foods when it can make people ill so from that complaint I got here! Like you say - a blessing to have found it and be able to share all our thoughts/experiences and moans with others.

    Take care and so nice to meet with you

    Teddy
    • CommentAuthorRita
    • CommentTimeMay 8th 2007
     
    Hi Les, concerning your metasulphite allergy, I would think sulphites are related, but I really could not tell you for sure, since I have not studied anything about metasulphites.
    • CommentAuthorBeth
    • CommentTimeMay 8th 2007
     
    Rita and Les, from what I've been reading sulfites (also spelled sulphites) are a more general term for a variety of sulfating agents which include: sodium sulfite, sodium bisulfite, sodium metabisulfite, potassium bisulfite and potassium metabisulfite, and pretty much anything ending in "sulfite" - look for a blog entry with more info on sulfites soon :) Hope you are all well.
    PS - sensitive_spider, I loved your reference to Lost ;)
    • CommentAuthorTEDDY
    • CommentTimeMay 8th 2007
     
    Thanks Beth and Rita.
    • CommentAuthorTEDDY
    • CommentTimeMay 25th 2007 edited
     
    Hi All

    Just wondered if anyone on the site had access to the following and if so I would love to obtain a copy. The dietician at the hospital told me that the last paper written about salicylates was about 20 years ago and gave me information on it. I thought I could access it on the web but I have had no luck. Does anyone know how to get hold of this and if so please let us know.

    It is pages 950-959
    It is volume 85
    It is entitled RESEARCH
    Salicylates in Foods
    It is by Swain et al
    August 1985
    in the Journal of American Dietetic Association

    Can anyone please help with this. I would love to read the article as I am interested in researching this paper.
    Hope someone can access this from somewhere.

    Take care

    Teddy
    • CommentAuthorAnna
    • CommentTimeMay 25th 2007
     
    http://www.cs.nsw.gov.au/rpa/allergy/resources/foodintol/development.cfm

    This will give you the full text.

    The rest of the site is worth looking around, these guys are the leading experts in Aus (well, the only ones taking it seriously anyway).

    Am in the process of printing this article out and reading it to get back to the basic info. Just need to get the time. Am booking it in for sometime next month or so - work and uni so busy I think my brain would explode if I tried to take in anything else at the moment.

    :) Anna.
    • CommentAuthorTEDDY
    • CommentTimeMay 26th 2007
     
    Hi Anna

    Thanks so much for this. Will enjoy reading this tonight!

    Much appreciated

    Teddy
    • CommentAuthorTEDDY
    • CommentTimeMay 26th 2007
     
    Anna

    I truly have to thank you for putting me onto the website I have been trying to find. This is a remarkable thesis by Anne Swain and it must have taken years of research and hard work. I am amazed at the quality and information I will be able to take from this. I cannot thank you enough for such a wonderful website and to be able to find this thesis to help me understand my condition[s] is truly amazing!!! Thank you so much for this Anna I really appreciate it.

    I must say to everyone on the website that they must look at the website address than Anna has kindly put on for me when I was trying to find an article about Salicylates in Food Intolerance by A R Swain. This is the most amazing thesis and it is a must for you all to look into.

    I really cant thank you enough for this Anna. I have been reading it for hours and will continue to keep reading it over and over again. I would never have managed to find it as I tried and had no luck so hope everyone else logs onto it and learns from such a wonderful thesis on Salicylates.

    Thank You Anna

    Kind regards
    Take care and nice to meet you

    Teddy
    • CommentAuthorBeth
    • CommentTimeMay 27th 2007
     
    I had seen references to this article before but also had trouble finding it - thank you Anna for posting it. I look forward to reading through it (though it might be a little while before I have the time to do so) :) Thanks again!
    • CommentAuthorAnna
    • CommentTimeMay 27th 2007
     
    You are both very welcome :)

    I am so glad to live in the age of the internet - think of how lonely and scary it would be without access to all of the info and support it enables!

    Am looking forward to giving it a good read and to do my own analysis of her findings as all I have ever read before are everyone else's conclusions.
    • CommentAuthorTEDDY
    • CommentTimeMay 28th 2007
     
    Yes Anna

    I cant wait to get into it. I was thinking of taking it on holiday with me as I cant wait to get into it but my husband says no you dont you are going for a break! So I will have to try and fit in some reading at nights and maybe next weekend if time permits.

    I have tried to find it and no luck so I really really appreciate you putting in on the forum. I am sure everyone else will be excited when they find it as its a wonderful thesis and so informative. Cant wait to get the time to get into it.

    Take care Anna

    Teddy
  3.  
    Wow, I am totally sensitive to salt...I can't eat anything already salted, it makes me gag! I have to ask myself how people can't realize there is so much salt on their food!!! So it's sodium metabisulphite allergy? I'm sure that's what my mom used to use when she washed the beer/wine bottles out when she was making cider and wine...hmmm....
    • CommentAuthorBuster
    • CommentTimeMay 8th 2010
     
    lizzbethsue,

    Have you tried Celtic Sea Salt?
  4.  
    I haven't, I have been using plain non iodized salt with nothing else added and very little as it seems my taste buds have had an explosion in "taste" lately.
    Sea salt wasn't something I had a chance to get yet...although my mom always has used it.
    Thanks
    • CommentAuthorBuster
    • CommentTimeMay 11th 2010 edited
     
    Updated link for Anne Swain's PhD thesis titled "The Role of Natural Salicylates in Food Intolerance":

    http://www.sswahs.nsw.gov.au/rpa/allergy/research/students/1988/AnneSwainPhDThesis.pdf
    • CommentAuthorkarkariki
    • CommentTimeMay 15th 2010
     
    Hi All
    There is actually quite a bit of published material on salicylates but they tend to be in medical journals and based primarily on aspirin.

    Particularly useful is:
    Salicylate Handbook by Sharla Race which can be purchased from http://www.foodcanmakeyouill.co.uk/


    Some points on salicylates that I have found useful:
    I plateaued after the initial elimination diet and made the next big gain by changing to a salicylate free toothpaste which I had to order by mail order.

    Processed products that use vanilla essence are high in salicylates, however ice cream is usually made with vanilla extract which is low in salicylates. In contrast yoghurt is usually made with vanilla essence.

    If you buy vegetables that have moderate to high levels of salicylates then the organically grown ones will have higher levels again as organic growing methods stimulate the defence mechanisms of plants. However I purchase organic carrots, organic golden kiwifruit and organic potatoes as each of these taste significantly better than the conventional versions.

    Fish and chips give me problems for some reason but they are fine if I remove the batter.

    Mike
    • CommentAuthorBuster
    • CommentTimeMay 19th 2010 edited
     
    When I searched for information regarding Anne Swain's paper, I came upon the following article, which indicates that the absolute levels of salicylates in various foods may have been overestimated by Swain.

    http://ajph.aphapublications.org/cgi/reprint/88/7/1124.pdf

    "However, the salicylate content of foods remains controversial. The authors cited the results of Swain et al., who tested 333 foods and estimated that average salicylate levels in the Western diet might range from 10 to 200 mg per person per day. However, Swain et al.'s studies that used validated biochemical
    analytic techniques. In particular, Venema et al. found much lower levels of natural salicylates in vegetables and fruits and even in herbs and spices."
    • CommentAuthorkarkariki
    • CommentTimeMay 19th 2010
     
    I have read similar articles. The point is that it is the relatively that is important rather than the absolute value.
    I have done a spreadsheet of all the figures I know and have colour-coded them from green to red.
    When you first do the elimination diet you are only taking the green (nil or very low) as you improve on your management of the condition you can dabble in the amber.
    In terms of relative values Swain has been a very good guideline
    • CommentAuthorBuster
    • CommentTimeMay 20th 2010
     
    I agree that the relative amount of salicylates in various products is what is really important.
  5.  
    Hello everyone.....I have just done a quick scan of the messages on here and am finding some really interesting things. I have Chronic Autoimmune Idiopathic Urticaria and have been advised by a dermatologist to follow a low salicylate diet, which up until this week, I had no idea what it was! I have been trying to get info on the net about it and came across this site, which has given me a huge insight into what I can and cannot have in my diet. Some of the items listed on here I have already worked out through a process of elimination, make my rash worse. I have always thought tomatoes made it worse, but I didn't know they are high in salicylates. It's actually quite scary how many foods and products contain them and it's going to make for interesting times to try eat a salicylate free diet. Is there anyone else here who has this condition?
    • CommentAuthorlizzbethsue
    • CommentTimeJun 6th 2010 edited
     
    Someone else here does or a few...I was just reading that condition...can't remember who, I'm sure they will pop around soon and introduce themselves..yes it is all very interesting. I arrived here just over a month ago and have learned vast amounts of information that I can't believe I never knew. i just read over all the posts and asked questions and are some very helpful people here...I think most of us do have some sort of autoimmune condition though, seems common, I have celiac/gluten intolerance...welcome!
    • CommentAuthorFabi
    • CommentTimeJun 6th 2010
     
    Welcome Sally,

    there are some people here with urticaria. I am one of them. I have an idopathic urticaria with angiodema. I seem to be one of the very rare cases, where the hives stay for many years (almost 25 year now). It is not that bad as it used to be at the begining, where I wasn't able to touch a thing without having that touch printed in hives on my skin. I even used to have scars from my trouser waistband. I felt like a little zebra, lol. With the years it got less. But it was by letting the culprits of my diet I have improved to the point of being almost hives free and I have only seen them or the angiodema back after transgresions of the diet. I now consider them and other symptoms as an alarm system of my body saying he prefers something else to eat.

    Hope you too will improve by changes on yur diet, some supplements and maybe antihistamines or mast cell stabilisators like ketitofen.

    Some questions:
    How often do you get hives? Do you have agiodema?

    Have you had your tryptase and the C1 inhibitor tested? Tryptase is a marker for the degree of continuing degranulation of mast cells and the C1Inhibitor's main function is the inhibition of the complement system to prevent spontaneous activation of the immune system.

    Do you have any other symptoms besides the urticaria?

    Kind Regards,
    Fabi
    • CommentAuthorpenann
    • CommentTimeJun 6th 2010
     
    Hi all,
    I'm new too, I put a little bit of background on the 'Who is Everyone' thread. I'm really interested in what Sally and Fabi are saying. I've never had a named diagnosis attached to my symptoms although it was over 20 years ago that I pursued this with my doctor. The hives have lessened over the years (although I am on Cetrizine) although other symptoms seem to come and go, and I still get welts at pressure points although no scarring so sorry to hear about yours Fabi. I really need to stop relying on hydrocotisone creams to reduce inflammation so I'm trying an elimination process again although I'm hopeless; I love my food and am struggling to stay in the 'green' foods and wander into 'amber' a fair bit. I will improve tho' and keep a diary as I'm tired of the scratching. I get mouth ulcers sometimes too and my lips feel like they're burning. I'm not confident that my GP would agree to some of the testing that is mentioned on this site, for instance the tests you mention Fabi; my symptoms are not as bad as some I've read about and I have tried this route before and been met with some scepticism.

    On the old diet sheet that I have it mentions that peas and bananas contain naturally occurring benzoic acid. Is this still the thinking? I've been eating loads of peas and I know I have a problem with bananas. I'm struggling to give up my cup of tea, although I have it very weak and have halved my intake. To liven up my diet I snack on cashews and salted potato crisps. Should I avoid these altogether until I'm sure they are safe?

    I must now try to dig out the Sharla Race handbook that I sent off for some time ago(Karkariki metions this) and work on isolating what aggravates symptoms. I'm grateful for all the info here and will spend some time reading more,
    Many thanks
    Penny
    • CommentAuthorlizzbethsue
    • CommentTimeJun 6th 2010 edited
     
    Bananas do strange things to me as well...I have to wonder if there is still some of the "gassing" left on them from when they are imported.
    I also read an "adrenal gland diet" where it said to avoid them because of the high glycemic index and potassium.
    I have to wonder where the term "gone bananas" came from LOL...
    Oh yes..a food diary helped me discover I have an intolerance to corn.
  6.  
    Hey Fabi........gosh 25 years!! That is really awful and not very encouraging for me!!!! I got this 8 years ago for the first time, and went thru all the allergy tests etc and after time they realised it was CU. It lasted for 2 years and went as mysteriously as it came. I was living in Zimbabwe at that time and then we moved to Mozambique in that interim. We moved to Australia 18 months ago and in November last year, it came back my to my dismay. I self diagnosed my self and medicated myself as I knew what it was but last week i went to a dermatologist and he changed my meds and told me to follow this Low Salicylate Diet which I am now doing research on. I have the rash every day and I too get the angiodema. I hate it when I wake up in the morning and my lips look like I have had an overdose of botox or my eyes look like someone has hit me!! I even get the rash on my feet and in the palm of my hands which drives me dilly!! Since changing my meds and watching what I eat, this morning is the first day I have woken up with very few spots and itches! I am now keeping a daily log of what I eat and the state of my rash. I had picked up a few things already that affect my rash and am staying well clear of them. It is very hard to stick to a diet like this as sometimes you are in a place you can't find what you need to eat, and you can also get very bored of it too, especially when you have two kids and a hubby who can eat everything, but I am trying to be good about it as I know the consequences of a lapse. I have followed a number of diets throughout the 6 months I have had this again, I even went to a Natropath out of pure desperation, but I know now what he told me was incorrect and not right for me. I haven't had either of the two tests you mentioned. I don't think I get any other symptoms, although having said that I have just eaten something that is giving me tummy pains. Aside from the usual effects of having CU like depression and paranoia I think I am 'other sypmtom' free! I do have an under active thyroid and Pernicious Anaemia which are both Autoimmune conditions.
    I just hope I don't have this for 25 years! I am sure mine will be the kind that comes and goes, but hopefully with this diet I can control the rash.
    Thanks for your welcome and I am sure we'll be chatting regularly......where do you live?
    Cheers
    Sally
    • CommentAuthorFabi
    • CommentTimeJun 7th 2010
     
    Hi Sally, I opened a new threat, so the story is not in the Thesis Thread...
    • CommentAuthorseptember
    • CommentTimeJun 11th 2010
     
    Do you know if Magnesium Citrate is okay to take if you have a salicylate sensitivity Thank you September
    • CommentAuthorFabi
    • CommentTimeJun 12th 2010
     
    I take it without problems and it is really helpful. I think pure MC it should be ok. Just be carefull about the fillers or other ingredients and do not take it with other minerals, since the lessen the abbility of the body of absorbing it.
    • CommentAuthornanciswell
    • CommentTimeJun 13th 2010
     
    I have not found a magnesium I can tolerate other than by taking epsom salts soaks.

    Anything called citrate from my reading is made from corn.. BUt it could be something else ..I can tolerate few supplements and have multiple sensitivities being a super responder .. It is not the fillers as those I know are alright in the supplements I buy...

    Magnesium is great for many systems in the body .. one of the most deficient vitamin in our diets.. So my suggestion is to experiment ,, then decide...
    • CommentAuthornanciswell
    • CommentTimeJun 13th 2010
     
    When you mention hives I think of the positive help my dentist got from his severe hives when he replaced his mercury/ silver fillings with composites. He got them when he was going to dentistry school.. had them for several years. He did some detox and for many years now has not had the probl.

    I myself am hoping that lowering my heavy metal levels will help me to eat more.. I have done several methods without success and some bad affects .

    I have now settled into doing something called frequent dose chelation with good results.. MY chronic ecoli bladder infections have greatly improved. I have not had one in a year now.. Before doing this chelating I had them so badly that antibiotics were no longer working. After my last infection and taking antibioitics it returned within 10 days..

    Also taking something called dmannose{ a super craneberry concentrate} helps .BUt I know that my kidneys/ bladder are better due to the chelating as even with the dmannose I had to stay on it or else I would get another infection.

    nanci
    • CommentAuthorednashedna
    • CommentTimeJun 23rd 2010
     
    Dear All,

    Just popped back to the site after over a year off it - and smiled! You are discussing all the stuff Lindy/Rita etc were discussing when I joined yonks ago. Worth putting a keyword eg bananas or urticaria into the search option - you'll be amazed at the info already on here perhaps (or perhaps not!)

    Hi to all,

    J PS Utopia - think not supposed to recommend any money making ventures on the site. Know you mean well tho.
    • CommentAuthorlizzbethsue
    • CommentTimeJun 23rd 2010 edited
     
    ednashedna...very interesting! Thanks for that bit of info, suprising what you can find!

    hmm..is it that bananas contain serotonin? low oxalate diet? low histamine diet? ugh..
    the suppliments listed with these sites? I don't want to be this way forever!

    http://urticaria.thunderworksinc.com/pages/lowhistamine.htm#Urticariadiet
    • CommentAuthorlindyd
    • CommentTimeJun 23rd 2010
     
    Hi Judith
    Good to hear from you.. how are you doing? I'm still around here..still learning..lots of new people have popped in and out but Rita and I are still here :o)
    Lindy xx
    • CommentAuthorednashedna
    • CommentTimeJun 26th 2010
     
    Hi Lindy and Rita :-)

    All well here. Glad you guys are still up and running with the site. It is funny popping back. Little one is now 4 1/2 and about to start school - and is half way through being assessed for ADHD. Salutary lesson really - he is indeed affected by salicylates - I have had to hide the Marmite and baked beans rev him up a gear very quickly - but I have had to accept that his condition is in part at least neurological and not just simply a reaction to foods. More complicated than I at first thought.

    How are you all? Are you all any better? Have you any major new insights from the past year? I saw King's bits on thyroid with great interest.

    Really good to be in touch.

    Love to all,

    Jxdx
    • CommentAuthorlindyd
    • CommentTimeJun 27th 2010
     
    Hi Judith
    Good to hear you and little one are doing well.
    I'm a lot better - you may see on another thread that I finally gave in and tried medication.. I am on ketotifen which is definitely helping and allowing me to eat a small amount medium sal foods..a great improvement for me!
    I'm also taking glucosamine sulphate which I believe is helping replace the sulphate that I am lacking.
    As long as I keep to my restricted diet I feel pretty much "normal" (with some early morning muscle stiffness which I think is just age related not sal related lol!).
    Love Lindy xx
    • CommentAuthorlindyd
    • CommentTimeJul 8th 2010
     
    http://www.feingold.org/Research/PDFstudies/Loblay1992-open.pdf

    The Role of Food Intolerance in Chronic Fatigue Syndrome
    RB Loblay MD Phd & A R Swain Phd

    Talks a lot about Salicylates & research when you get past the first page. also has a lot of references.
    Lindy xx
    • CommentAuthorlizzbethsue
    • CommentTimeJul 8th 2010 edited
     
    Interesting you should bring up CFS....
    Was just looking and seems like new studies are showing people with CFS have elevated lactate levels
    http://ask.doctoroz.com/question/cfs-study
    • CommentAuthorlizzbethsue
    • CommentTimeJul 8th 2010 edited
     
    Lindy..that's a really interesting article...I already had a CFS/FMS diagnosis...didn't realize it could turn into this but can see how so many things that have happend can cause what I'm experiencing ie; too many antibiotics, NSAIDs, stress, sudden change to GF diet.....
    • CommentAuthorlindyd
    • CommentTimeJul 8th 2010 edited
     
    I've printed the article off and read it through properly...I don't fully understand it at the moment - will need to read it again and highlight the bits I don't understand and investigate them further.
    However I am really excited by this article.. on page 531 it talks about Food Intolerance (ie food chemical sensitivity) being "an abnormality of neuroregulation" a CNS issue - rather than an enzyme/detox problem or cyclooxygenase/arachidonate issue...This makes so much sense....
    If you read it you need to perservere and read through to the last few pages which are the most interesting..
    When I have read it through again and done some more research I will start a new thread on this one!
    Lindy xx